Clinical trials are how new NF treatments become standard care. MEK inhibitors for plexiform neurofibromas reached patients through trials like these.
Our trial network
UCSF is a full-site member of the Neurofibromatosis Clinical Trials Consortium (NFCTC), a national network funded by the U.S. Department of Defense. We also open trials through the Pediatric Neuro-Oncology Consortium (PNOC), the UCSF Brain Tumor Center, and industry partners.
What we study
- Targeted therapies for plexiform and cutaneous neurofibromas
- Treatments for NF1-associated low-grade gliomas
- Therapies for vestibular schwannomas and other tumors in NF2-related schwannomatosis
- Pain and quality-of-life interventions in schwannomatosis
- Cognitive and learning outcomes in NF1
Find a trial that fits
Open trials change often, so we don't post a static list here. Contact our team and we will review which studies you or your patient may qualify for.
- Adult trials: see adult clinic contacts
- Pediatric trials: see pediatric clinic contacts
You can also search national listings at ClinicalTrials.gov and the Children's Tumor Foundation.
Taking part in a trial
Joining a trial is always voluntary. Our research team will explain the study, its possible benefits and risks, and what visits involve before you decide. You can leave a trial at any time without affecting your care.